About

From The Desk Of Dorothy (Founder of Sarcoidosis Living)

My Story

My Story
Sarcoidosis changed my life in ways I never expected.
Like many people, I didn’t just receive a diagnosis—I was thrown into a world of uncertainty, unanswered questions, symptoms that didn’t always make sense, and a body that no longer worked the way it used to. I faced fatigue that others couldn’t see, emotional battles no one talked about, and the challenge of learning how to live again in a new reality.
There were moments of fear. Moments of frustration. Moments when I felt invisible.
But there were also moments of strength I didn’t know I had.
Through my journey, I learned that managing sarcoidosis isn’t only about medications and doctor visits—it’s about learning your body, protecting your peace, nourishing yourself, caring for your mental health, and holding onto faith when the path feels uncertain.
I created Sarcoidosis Living because I didn’t want anyone else to feel lost, alone, or unheard the way I once did. I wanted a place where education meets compassion, where holistic wellness can exist alongside medical care, and where faith, hope, and encouragement are just as important as treatment plans.
This platform is built from lived experience, research, prayer, and a deep desire to help others live fully—even with a chronic illness.
If you’re here because you are newly diagnosed, struggling through flare-ups, navigating medications, or simply searching for understanding, I want you to know this:
You are not walking this journey alone. I am walking it with you.

The Mission

My mission with Sarcoidosis Living is to empower individuals and families affected by sarcoidosis to live informed, supported, and purpose-driven lives. I share trusted resources, holistic wellness tools, and faith-based encouragement to help you care for your body while strengthening your mind and spirit.

Why I Created Sarcoidosis Living

Sarcoidosis can feel overwhelming, confusing, and isolating. I know how heavy it can be to live with:

  • Uncertainty about symptoms and flare-ups
  • Side effects from medications like prednisone
  • Chronic fatigue, pain, and invisible illness
  • Emotional stress, anxiety, and fear of the unknown
  • Feeling misunderstood or alone

    —I created Sarcoidosis Living to be the place where knowledge meets compassion. A place where medical understanding and holistic wellness can exist together. A place where faith, hope, and strength are nurtured alongside practical tools for daily living.—-

    This is more than a website to me—it is a community of support.

    What You’ll Find Here

    🌿 Education & Awareness

    Clear, supportive information about:

    • The different types of sarcoidosis
    • Symptoms by organ system
    • Treatments and medications
    • Managing flare-ups
    • Identifying and understanding your triggers

    🥗 Nutrition & Wellness

    Anti-inflammatory recipes, smoothies, and wellness guidance designed to support your body in ways that are realistic, nourishing, and sustainable.

    💆🏽‍♀️ Holistic Support

    Resources on:

    • Herbal and natural supplements
    • Massage, movement, and gentle exercise
    • Stress management and self-care
    • Creative and healing practices

    🧠 Mental & Emotional Health

    Encouragement and tools to help you:

    • Navigate anxiety and depression
    • Process grief and lifestyle changes
    • Build resilience and emotional strength

    ✝️ Faith-Centered Encouragement

    Uplifting reflections, scripture, and messages of hope for those who lean on faith during difficult seasons. I believe God walks with us through every diagnosis, every setback, and every victory.

    My Heart for This Community

    Sarcoidosis Living exists to remind you that:

    • You are not broken.
    • You are not forgotten.
    • You are not alone.

    I honor every story, every struggle, and every victory—no matter how small it may seem. Whether you are newly diagnosed or have been living with sarcoidosis for years, you are welcome here.